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The Official Dysautonomia LJ Community!

Name:
Dysautonomia
Membership:
Moderated
Posting Access:
All Members
Description:
The Official Dysautonomia Community!
This is a community where everybody that has Dysautonomia (or if you know someone with this illness that you are close to) can come together and talk about their problems, experiences, aches, pains, your medications, support eachother, and anything else you'd like to post about.



This is a moderated community.
If you'd like to join after clicking join community please send me an e-mail at paige_elmore@hotmail.com explaining when you or your loved one got diagnosed, what other problems you have such as POTS, Mitral Valve Prolapse, etc...



After you've been accepted you can (it's not required) post this survey to the community:

1. What was your first symptom that you noticed?


2. What day was that if you can remember?


3. If you could get rid of one symptom what would it be?


4. What symptom do you experience the most?


5. What does POTS/MVP stand for to you?


6. What is the best thing about having Dysautonomia?


7. What is the worst thing about having Dsyautonomia?


8. If you could go back and choose to never have gotten sick, would you?


9. What do you do for fun?


10. Did you play sports or work out a lot before you got Dysautonomia?


11. Do you still work?


12. Are still able to drive?


13. Do you still go to school?


14. What is your favorite time of the day?


15. How long did it take you to get diagnosed correctly?


16. Anything else you'd like to say:


17. How do you think we could spread more Dysautonomia awareness?




R U L E S !
No trolling.
No snarky comments.
No discrimination.



Welcome!



Websites
DREAMS: Dysautonomia Reaching out for Education, Awareness, and Moral Support!
Dysautonomia Youth Network of America, Inc.
American Dysautonomia Institute
National Dysautonomia Research Foundation
Dysautonomia Information Network
Misunderstood Disorders
Dysautonomia Support Network

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